World Congress
World Congress Header
OUR VISION
Children born with chromosome abnormalities will have specific treatments so they can lead healthy and autonomous lives.


Topics For Families:
Sibling Issues
Estate Planning
Special Education Rights
Research updates for each syndrome
Medical Issues
Behavior Strategies


For Chromosome Abnormality Organizations:
Fundraising
Initiating and Sustaining Registries & Research
Influencing Public Policy
Research updates for each syndrome


For Healthcare Professionals:
Clinical and molecular research reports
Clinical protocol development
Scientific presentations (Platform & Posters)
Abstracts will be accepted beginning March 1, 2004

Host Organizations
The Chromosome 18 Registry & Research Society
Support Organization for Trisomy 18, 13 and Related Disorders (SOFT)
Disorders of Chromosome 16 (DOC16)
IsoDicentric 15 Education, Advocacy and Support (IDEAS)
Chromosome 22 Central
Distal Trisomy 10q Families


Sponsors
The Chromosome 18 Registry & Research Society
Department of Pediatrics, University of Texas Health Science Center at San Antonio
The Office of Rare Diseases, National Institutes of Health
The National Institute for Child Health and Human Development
Disorders of Chromosome 16 (DOC16)
Support Organization for Trisomy 18, 13 and Related Disorders (SOFT)
GlaxoSmithKline
Morgan Stanley Foundation


                    


World Congress logo art by Bruce Steinke

 




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